The story they tell is about the gruelling process and impact of dialysis on my body and life. Dialysis keeps me alive but it is also a thief of time and strength, and that can make life a challenging balance between surviving and thriving – You are grateful to be alive but you are hurting because you can’t always pursue all your goals/purpose as you are perpetually exhausted/lethargic.
Above all, it is a story of hope and resilience, and the fight to keep going because of a renewed perspective to make the moments and minutes of life count for something. It is also about my belief in our shared humanity. This is why I have added my voice to the conversation about organ donation in the UK Black and African community because I believe that when we know better, we will do better by us and for us.